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Wolf-Hirschhorn Syndrome is like a puzzle with a missing piece in your body’s instructions, called genes. This can make learning harder, growing slower, and cause unique facial features and seizures. But remember, it doesn’t stop kids from living happy and fulfilling lives!
What is Wolf-Hirschhorn Syndrome?
Wolf-Hirschhorn Syndrome is a genetic condition that affects growth and development, causing intellectual disability, distinctive facial features, and seizures.
What causes Wolf-Hirschhorn Syndrome?
It’s caused by a missing piece on one of the body’s genes, specifically on the short arm of chromosome 4.
What are some symptoms of Wolf-Hirschhorn Syndrome?
Symptoms include distinctive facial features, intellectual disability, slow growth, and seizures.
How is Wolf-Hirschhorn Syndrome treated?
Treatment focuses on managing symptoms and may include speech, physical, and occupational therapy, special education strategies, and regular medical check-ups.
Wolf-Hirschhorn Syndrome (WHS) is a genetic disorder resulting from a deletion on the short arm of chromosome 4. The syndrome is characterized by a distinctive facial appearance, delayed growth and development, intellectual disabilities, and seizures.
Managing Wolf-Hirschhorn Syndrome is about tackling each symptom individually. Here are a few strategies:
Every child is unique and so is their journey with WHS. Over time, seizures often reduce, and with the right support, these children can lead a fulfilling life full of accomplishments.
Our tool, Goally, can be a great ally for kids with WHS. It can simplify their daily routines, build language skills, and foster independence. The fun, gamified learning and visual schedules can make the complex world a little bit easier for them to navigate.
