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Medicaid Waiver Illinois

Parenting a neurodivergent child can sometimes feel like navigating a labyrinth. You’re always on the lookout for resources and support. But, have you ever stumbled upon the Medicaid Waiver Illinois program? It’s like finding a hidden treasure chest, a little complex but filled with rewards. This program can be a game-changer, offering a wealth of resources for your child. So, let’s break it down together, exploring the intricacies of the Medicaid Waiver Illinois program.

What is the Medicaid Waiver Illinois Program?

Before we delve deeper, let’s understand what this program is all about. The Medicaid Waiver Illinois program is a lifeline for individuals with disabilities, including neurodivergent kids. It’s designed to provide various services, from medical care to home and community-based services. The goal? To help individuals live as independently as possible in their communities.

How do you know if your child is eligible? The program is open to Illinois residents with specific income and disability criteria. Its services include personal care, respite care, and therapeutic interventions. Yes, the application process can be complex, but don’t let that deter you. There are resources available to help you navigate the process.

Why the Medicaid Waiver Illinois Program Matters for Neurodivergent Kids

Now, you might wonder why you should consider this program for your child? Well, the Medicaid Waiver Illinois program can be a game-changer. It provides a comprehensive care approach, addressing medical and non-medical needs. This means your child gets the support they need when they need it, without you having to worry about the financial burden.

That’s right, the program can significantly reduce out-of-pocket expenses by covering a wide range of services. But that’s not all. The program promotes independence by providing services in the home and community settings. This means your child can thrive in familiar surroundings while getting the necessary care. It’s a win-win situation.

medicaid waiver illinois. a parent meets with a medicaid waiver specialist.

Applying for the Medicaid Waiver Illinois Program

So, how do you go about applying for the Medicaid Waiver Illinois program? Yes, it can seem daunting, but you can navigate it successfully with a little preparation. The first step is to check if your child qualifies. Review the eligibility criteria carefully. Next, gather all necessary documentation, such as medical records and proof of income. Remember, a well-prepared application is a successful one.

Once you have all your documents in order, it’s time to submit your application. Be sure to provide all requested information to avoid delays. After submitting your application, follow up regularly to check its status. Yes, it requires some effort, but remember, the benefits for your child are well worth it.

Goally Waiver ScorecardScore
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Other online resources for Illinois:

Telephone Resources:

Maximizing the Benefits of the Medicaid Waiver Illinois Program

Securing the Medicaid Waiver is just the beginning. Now, it’s time to make the most of it. Familiarize yourself with the services covered by the program and how they can benefit your child. Feel free to seek guidance from professionals or other parents who have navigated the program. And most importantly, be proactive in advocating for your child’s needs to ensure they receive the best possible care.

Remember, tools like Goally can also greatly support your child. Goally is a learning tablet designed specifically for neurodivergent kids. It can complement the services the Medicaid Waiver Illinois program provides, offering additional support for your child’s learning and development.

An assortment of interactive video class thumbnails, including dental care and cooking, on the best tablet for kids by Goally.

Goally | Best Videos to Teach Life Skills

Give your kid an independent future. Goally has 100+ video classes teaching life skills like “How to Choose a Restaurant,” “How to Interrupt Politely,” and “How to Get Ready for School.”

Goally takes kids on an adventure that includes interactive practice and checkpoints along the way! No web browsers, YouTube, or social media.

In short, the Medicaid Waiver Illinois program can be a lifeline for parents of neurodivergent kids. It may require some effort to navigate, but the rewards are well worth it. You’re not alone in this journey. Resources and support are available to help you every step of the way. So, take a deep breath, roll up your sleeves, and get ready to unlock the potential of the Medicaid Waiver Illinois program for your child.

Who can apply?

Circumstance/Diagnosis: Any child or young adult under 21 who is diagnosed with either an intellectual and/or developmental disability (this includes autism). The state requires that individuals need an intermediate care facility level of care to qualify. This just means that the individual is unable to get through their day without a lot of supervision.
Income: Income eligibility is only based on the child’s income and not the parents income. This means that your child is financially eligible for the waiver if they don’t have an income.

What do I get?

Service Facilitation, Personal Support, Behavior Intervention and Treatment, Training and Counseling for Unpaid Caregivers, Adaptive Equipment, Assistive Technology, Home Accessibility Modifications, Vehicle Modifications, Temporary Assistance

How do I apply?

Call 1-866-376-8446 or your local Department of Health Services Developmental Disability Office
Once you submit an application you will be placed on a waiting list, it normally takes 5-7 years before you start receiving services!

What does the Goally Team Think?

Illinois has a ton of different waivers. This makes the process overly complicated. Essentially Illinois provides great resources for people with disabilities who need hospital or nursing home level of care, but provides essentially nothing to those who need a lot of attention but don’t qualify for those services. Their waiver programs only accommodate a few thousand people but frequently see waitlists of 15,000-23,000 people. You can view the full list of Illinois waivers HERE, we recommend that you take a look at the Persons with Disabilities Waiver if you believe your child is at risk of being placed in a nursing home.

This post was originally published on 02/16/2023. It was updated on 09/15/2023.