Medicaid Waiver Illinois

What is the Medicaid Waiver Illinois Program?

Illinois currently has six waivers that are open to children that are all HCBS 1915(c) Medicaid waivers. Three of these programs waive parental income; three do not. View Illinois’ HCBS waiver page. In 2024, Illinois announced that three of these waivers, Persons with Disabilities, Persons with Brain Injury, and Persons with HIV or AIDS, would be combined into a unified program. More information will be provided when this occurs.

Illinois Waiver Programs

Medically Fragile, Technology Dependent Waiver

• Description from medicaid.gov: Provides respite, specialized medical equipment and supplies, certified nursing assistant (CNA), environmental accessibility adaptations, family training, in-home shift nursing, nurse training, and placement maintenance counseling services for individuals who are medically fragile and technology dependent, ages 0 to no maximum age.
• Online State Information: HCBS Waiver Page for the MFTD Waiver
• Official Federal Information
• How to Apply: Call the Division of Specialized Care for Children at (800) 322-3722 and fill out the initial application here.
• Waiting List: None

Support Waiver for Children and Young Adults with Developmental Disabilities

• Description from medicaid.gov: Provides adaptive equipment, assistive technology, behavior intervention and treatment, self direction assistance, home accessibility modifications, personal support, temporary assistance, training and counseling services for unpaid caregivers, and vehicle modification services for individuals with autism, intellectual disabilities, and developmental disabilities, ages 3 to 21 years.
• Online State Information: Children’s Support Waiver page
• Official Federal Information
• How to Apply: Call the helpline at 1-888-DD-PLANS or 1-866-376-8446 (TTY) or find your DHS Developmental Disability office (Independent Service Coordination [ISC] Agency). Call the office to submit an application and be placed on the waiting list.

Residential Waiver for Children and Young Adults with Developmental Disabilities

• Description from medicaid.gov: Provides child group home, adaptive equipment, assistive technology, behavior intervention and treatment for individuals with autism, developmental disabilities, and intellectual disabilities, ages 3-21 years.
• Online State Information: Children’s Residential Waiver page
• Official Federal Information
• How to Apply: Call the helpline at 1-888-DD-PLANS or 1-866-376-8446 (TTY) or find your DHS Developmental Disability office. Call the office to submit an application and be placed on the waiting list.

Persons with Disabilities Waiver

• Description from medicaid.gov: Provides adult day care, homemaker, individual provider, respite, home health aide, occupational therapy, physical therapy, speech therapy, environmental accessibility adaptations, home delivered meals, in-home shift nursing, intermittent nursing, personal emergency response system, and specialized medical equipment for individuals with physical disabilities, ages 0 – 59.
• Online State Information: Persons with Disabilities Waiver Page
• Official Federal Information
• How to Apply: This waiver is part of the Home Services Program. First apply for Medicaid, and then apply for the waiver through DHS/DRS. Call 1-800-843-6154 or 1-800-447-6404 (TTY), or contact Rehabilitation Services.

HCBS Waiver for Persons With Brain Injury

• Description from medicaid.gov: Provides adult day service, day habilitation, homemaker, independent provider, prevocational services, respite, supported employment, home health aide, intermittent nursing, occupational therapy, physical therapy, speech therapy, cognitive behavioral therapies, environmental accessibility adaptations, home delivered meals, in-home shift nursing, personal emergency response systems, and specialized medical equipment and supplies for individuals with brain injury, ages 0 to no maximum age.
• Online State Information: Brain Injury Waiver Page
• Official Federal Information
• How to Apply: This waiver is part of the Home Services Program. First apply for Medicaid, and then apply for the waiver through DHS/DRS. Call 1-800-843-6154 or 1-800-447-6404 (TTY) or contact Rehabilitation Services.

HCBS Waiver for Persons with HIV or AIDS

• Description from medicaid.gov: Provides adult day service, homemaker, independent provider, respite, home health aide, intermittent nursing, occupational therapy, physical therapy, speech therapy, environmental accessibility adaptations, home delivered meals, in-home shift nursing, personal emergency response system, and specialized medical equipment and supplies to individuals with HIV/AIDS ages 0 or older who meet a nursing facility level of care.  This waiver operates with a concurrent 1915(b)(1), 1932(a), and 1115 authority.
• Online State Information: Persons with HIV/AIDS waiver page
• Official Federal Information
• How to Apply: This waiver is part of the Home Services Program. First apply for Medicaid, and then apply for the waiver through DHS/DRS. Contact 1-800-843-6154 or 1-800-447-6404 (TTY), or contact Rehabilitation Services.

Other online resources for Illinois:

• The Autism Program of Illinois (TAP) provides parent training, social skills groups for kids, and consultation services for families with autism.
• Family Voices Illinois can help you find information about government resources, insurance, and youth transition programs.
• Illinois Center for Autism has information on schools, adult services, and hosts occasional events

Telephone Resources:

• (217) 782-3075 Illinois Department of Human Services
• Department of Health Services Developmental Disability Office by county

Ordering Goally with a Medicaid Waiver

Talk with your case manager to see if the waiver program you have will cover Goally. If so, have your case manager email us at: [email protected] to place an order on your behalf.

This post was originally published on 02/16/2023. It was updated on 03/19/2025.