Parent Press

a Goally Publication

Parent Press

a Goally Publication

Get

Goally

Opsoclonus Myoclonus Syndrome

Home>>Neurodiversopedia>>O Terms

Summary

summary

Opsoclonus Myoclonus Syndrome (OMS) is a rare neurological condition that affects the body’s movements and coordination. Kids with OMS may experience sudden jerky movements (myoclonus) and uncontrollable eye movements (opsoclonus).

Table of Contents

table-of-contents

Frequently Asked Question

donut

How is Opsoclonus Myoclonus Syndrome diagnosed?

Diagnosis involves a comprehensive evaluation by a healthcare professional experienced in neurodevelopmental disorders, which may include medical history, physical examination, neurological tests, and imaging studies.

Is Opsoclonus Myoclonus Syndrome a lifelong condition?

The long-term prognosis for OMS varies, but with early and comprehensive intervention, many children can experience significant improvement in symptoms and overall functioning. Regular follow-ups and continued therapies can contribute to positive outcomes.

Is Opsoclonus Myoclonus Syndrome hereditary?

OMS is not typically considered a hereditary condition. It usually occurs sporadically, without a family history. However, in rare cases, there may be a genetic predisposition or a link to specific genetic mutations.

Can Opsoclonus Myoclonus Syndrome affect adults as well?

While OMS is more commonly diagnosed in children, it can also affect adults, though it is rare. The symptoms and treatment approach may differ compared to cases in children.

image-banner

Scientific Definition

scientist

Opsoclonus Myoclonus Syndrome (OMS) is a neurological disorder characterized by a combination of involuntary, rapid eye movements (opsoclonus) and sudden, jerky muscle movements (myoclonus). OMS is a rare condition whose exact cause is not fully understood. In most cases, it occurs in children, often under the age of 5 years, but it can also affect adults. Besides the motor symptoms, individuals with OMS may experience other neurological and behavioral issues. Early diagnosis and treatment by healthcare professionals specialized in neurodevelopmental disorders are crucial to managing OMS effectively.

image-banner

Treatment for Opsoclonus Myoclonus Syndrome

When treating Opsoclonus Myoclonus Syndrome (OMS), early and comprehensive intervention is key to managing its symptoms effectively. Here are some approaches that could positively impact your child’s journey with OMS.

  • Immunotherapy: In some cases, OMS is triggered by the body’s immune response. Immunotherapy, such as corticosteroids or intravenous immunoglobulin (IVIG), might modulate the immune system and reduce symptoms.
  • Tumor Management: If OMS is associated with tumors, treating or removing the underlying tumor may improve symptoms.
  • Symptomatic Relief: Medications may help alleviate symptoms like myoclonus or sleep disturbances.
  • Physical & Occupational Therapy: These therapies can improve motor skills, coordination, and daily living activities.
  • Speech & Language Therapy: Targeted interventions can support communication and language development.
  • Supportive Care: Providing a structured and supportive environment and routine adjustments can enhance the child’s quality of life.

The long-term prognosis for children with Opsoclonus Myoclonus Syndrome varies, but with timely and comprehensive interventions, many children can experience significant improvement in symptoms and achieve better overall functioning and quality of life. 

Symptoms of Opsoclonus Myoclonus Syndrome

Opsoclonus Myoclonus Syndrome (OMS) presents a range of symptoms that can be challenging to identify, especially for parents of kids with special needs. Here are some symptoms to watch out for:

  • Uncontrolled Eye Movements (Opsoclonus): Sudden, rapid, and unpredictable eye movements make it difficult for the affected individual to focus their vision.
  • Jerky Muscle Movements (Myoclonus): Involuntary muscle jerks, often affecting the arms and legs, can lead to clumsiness and difficulty with coordination.
  • Ataxia: Balance and coordination problems may cause unsteady walking and difficulties with fine motor skills.
  • Behavioral Changes: Irritability, mood swings, and sleep disturbances may be observed.
  • Speech and Language Issues: OMS can lead to speech delays and difficulty expressing thoughts and ideas.
  • Cognitive Impairment: Some individuals may experience learning difficulties and challenges with cognitive functions.
  • Tumors and Neuroblastoma: In some cases, OMS may be associated with tumors, particularly neuroblastoma, cancer that affects nerve tissue.

Recognizing these symptoms early on can help parents seek medical attention promptly and start appropriate interventions to improve their child’s quality of life and overall well-being. Goally, a tablet with fun apps, helps kids with Opsoclonus Myoclonus Syndrome build life & language skills. Its features include visual schedules, AAC, emotional regulation, executive functioning, and social skills training videos.

image-banner

About

Company info

Media requests

Contact us

Our Services

Warranty

Terms Of use

Privacy Policy

Our Website

Neurodiversopedia

Parent Press

Privacy Policy